Vivencias en la integración psicosocial de jóvenes y adultos jóvenes sobrevivientes de cáncer
Experiences in the psychosocial inte-gration of youth and young adult cancer survivors
Resumen
Abstract
Bibliografía
1. Cadena A, Castro G, Franklin E. Vivencias y significados de adolescentes sobrevivientes al cáncer. TRILOGÍA. 2014, 10: 145-163. Doi: https://doi.org/10.22430/21457778.441.
2. Ministerio de Salud. Santiago: MINSAL; 2012. Programa Nacional de Salud Integral de Adolescentes y Jóvenes. Plan de Acción 2012-2020. Disponible en: http://web.minsal.cl/portal/url/item/d263 acb5826c2826e04001016401271e.pdf [acceso: 23/ 02/2022].
3. Steliarova-Foucher E, Ullrich A. Preguntas frecuen-tes sobre el cáncer infantil: Organización Mundial de Salud. 2019. Disponible en: https://www.who.int/cancer/media/news/Childhood _cancer_day/es/ [acceso: 12/03/2022].
4. Poudel P, Bauer H, Srivastava D, Krull K, Hudson M, Robison L, Wang Z, Huang I. Online Platform to Assess Complex Social Relationships and Patient-Reported Outcomes Among Adolescent and Young Adult Cancer Survivors. JCO Clinical Cancer Infor-matics. 2021:5, 859-871. Doi: 10.1200/CCI.21.00044.
5. Cameron N, Ross K, Baken D, Bimler D. The psychosocial interactions of adolescent and y young adult cancer survivors and the possible relationship with their development. Cancer Nurs. 2019; 00 (0),1-11. Doi: 10.1097/NCC.0000000000000732.
6. McDonnell G, Pope A, Schuler T, Ford J. The relationship between cancer‐related worry and post-traumatic growth in adolescent and young adult cancer survivors. Psycho‐Oncology. 2018; 27: 2155–2164. Doi: 10.1002/pon.4785.
7. Baker JD. The Purpose, Process, and Methods of Writing a Literature Review. AORN J. 2016; 103(3):265–9. Doi: http://doi.wiley.com/10.1016/ j.aorn.2016.01.016.
8. Ortiz MC, Castanheira L, Szylit R Bousso, Apare-cida R. A vida aspó o câncer infantojuvenil: experiên-cias dos sobreviventes. Rev Bras Enferm. 2013; 66(6): 873-8. Doi: https://doi.org/ 10.1590/S0034-71672013000600010.
9. Belpame N, Kars MC, Deslypere E, et al. Living as a cancer survivor: a qualitative study on the experienc-es of Belgian adolescents and young adults (AYAS) after childhood cancer. J Pediatr Nurs. 2019;49: e29-e35. Doi: 10.1016/j.pedn. 2019.07.015.
10. Kahalley LS, Wilson SJ, Tyc VL, Conklin HM, Hudson MM, Wu S, Hinds PS. Are the psychological needs of adolescent survivors of pediatric cancer adequately identified and treated. Psycho-Oncology. 2013; 22(2): 447–458. Doi: 10.1002/ pon.3021.
11. Barakat LP, Li Y, Hobbie WL, Ogle SK, Hardie T, Volpe EM, Deatrick JA. Health-related quality of life of adolescent and young adult survivors of child-hood brain tumors. Psycho-Oncology. 2014; 24(7): 804–811. Doi: https://doi.org/10.1002/ pon.3649.
12. Braga TRL, Mattos CX, Cabral IE. Participatory health education on school (re)inclusion of the adoles-cent cancer survivor. Rev Bras Enferm. 2021;74(1): e20200006. Doi: http://dx.doi.org/10. 1590/0034-7167-2020-0006.
13. Kim B, White K, Patterson P. Understanding the experiences of adolescents and young adults with cancer: A meta-synthesis. Eur J Oncol Nurs. 2016; 24:39-53. doi: 10.1016/j.ejon.2016.06.002.
14. Hudson M, Oeffinger K, Jones K, Brinkman T, Krull K, Mulrooney D, Mertens A, Castellino S, Casillas J, Gurney K, Nathan P, Leisenring W, Robi-son L, Ness K. Age-Dependent Changes in Health Status in the Childhood Cancer Survivor Cohort. J Clin Oncol. 2015; 33:479-491. Doi: 10.1200/JCO.2014.57.4863.
15. Suh E, Stratton KL, Leisenring WM, Nathan PC, Ford JS, Freyer DR, McNeer JL, Stock W, Stovall M, Krull KR, Sklar CA, Neglia JP, Armstrong GT, Oeffinger KC, Robison LL, Henderson TO. Late mortality and chronic health conditions in long-term survivors of early-adolescent and young adult cancers: a retrospective cohort analysis from the Childhood Cancer Survivor Study. Lancet Oncol. 2020;21(3):421-435. Doi: 10.1016/S1470-2045(19)30800-9.
16. Effinger K, Link M. For patients with cancer, cure is not enough. JAMA Oncol. 2016; 2(2):176-178. Doi:10.1001/jamaoncol.2015.4392.
17. Pugh G, Hough R, Gravestock H, Haddrell J, Beeken R, Fisher A. The Lifestyle Information and Intervention Preferences of Teenage and Young Adult Cancer Survivors. Cancer Nurs. 2018; 41 (5): 389-398. Doi: 10.1097/NCC.0000000000000508.
18. Rugbjerg K, Olsen J. Long risk of hospitalization for somatic diseases in survivors of adolescent or young adult cancer. JAMA Oncol. 2016; 2(2):193-200. Doi: 10.1001/jamaoncol.2015.4393.
19. Jones JM, Fitch M, Bongard J, Maganti M, Gupta A, D'Agostino N, Korenblum C. The Needs and Experiences of Post-Treatment Adolescent and Young Adult Cancer Survivors. J Clin Med. 2020;9(5):1444. Doi: 10.3390/jcm9051444.
20. Gaete V. Desarrollo psicosocial del adolescente. Rev. Chil Pediatr. 2015; 86 (6): 436-443. Doi: http://dx.doi.org/10.1016/j.rchipe.2015.07.005.
21. Glazer TS, Schulte F. Barriers to Oncofertility Care among Female Adolescent Cancer Patients in Canada. Curr Oncol. 2022; 29(3):1583-1593. Doi: 10.3390/curroncol29030133.
22. Reinman L, Coons HL, Sopfe J, Casey R. Psy-chosexual Care of Adolescent and Young Adult (AYA) Cancer Survivors. Children (Basel). 2021; 8(11):1058. Doi: 10.3390/children8111058.
23. Jim HSL, Jennewein SL, Quinn GP, Reed DR, Small BJ. Cognition in Adolescent and Young Adults Diagnosed with Cancer: An Understudied Problem. J Clin Oncol. 2018; 36(27):2752-2754. Doi: 10.1200/JCO.2018.78.0627.
24. Valizadeh A, Zamanzadeh V, Ghahramanian A, Musavi S, Chou F. Adolescent cancer survivors' experiences of supportive care needs: A qualitative content analysis. Nurs Health Sci. 2019; 22(2): 1-8. Doi: 10.1111/nhs.12640.
25. Brown M, Pearce M, Bailey S, Skinner R. The long-term psychosocial impact of cancer: The views of young adult survivors of childhood cancer. Eur J Cancer Care. 2016; 25(3): 428–439. Doi: https://doi.org/10.1111/ecc.12380.
26. Tindle D, Windsor C, Yates P. Centralizing Temporality in Adolescent and Young Adult Cancer Survivorship. Qual. Health Res. 2019; 29(2): 173 –183. Doi: https://doi.org/10.1177/10497 32318797.
27. Bellver A, Verdet H. Adolescencia y cáncer. Psicooncologia. 2015; 12(1): 141-156. Doi: 10.5209/rev_PSIC.2015.v12.n1.48909.
28. Ponce L, Martínez R, Tejada M. Resiliencia y secuelas en pacientes sobrevivientes a un cáncer en edad pediátrica. Acta Pediátrica Hondureña. 2015; 4(2): 291-297. Doi: https://doi.org/10.5377/pedia tri-ca.v4i2.2223.
29. Wong AW, Chang T, Christopher K, Lau SC, Beaupin LK, Love B, Feuerstein M. Patterns of unmet needs in adolescent and young adult (AYA) cancer survivors: In their own words. J Cancer Surviv. 2017; 11(6): 751–764. Doi: 10.1007/ s11764-017-0613-4.
30. Cherven B, Sampson A, Bober SL, Bingen K, Frederick N, Freyer DR, Quinn GP. Sexual health among adolescent and young adult cancer survivors: A scoping review from the Children's Oncology Group Adolescent and Young Adult Oncology Discipline Committee. CA Cancer J Clin. 2021;71 (3):250-263. Doi: 10.3322/caac.21655.
31. Robison LL, Hudson MM. Survivors of childhood and adolescent cancer: Lifelong risks and responsibili-ties. Nat Rev Cancer. 2014; 14(1), 61-70. Doi: 10.1038/nrc3634.
32. Nilsson J, Jervaeus A, Lampic C, Eriksson L, Widmark C, Armuand G, Wettergren L. ‘Will I able to have a baby?’ Results from online focus group discus-sions with childhood cancer survivors in Sweden. Human Reproduction. 2014; 29 (12): 2704–2711. Doi: 10.1093/humrep/deu280.
33. Lehmann V, Keim M, Nahata L, Shultz E, Klosky J, Tuinman M, Gerhardt C. Fertility-related knowledge and reproductive goals in childhood cancer survivors. Human Reproduction. 2017; 32(11): 2250–2253. Doi: 10.1093/humrep/dex297.
34. Ingrand I, Dupraz C, Meunier AS, Devaux C, Dujoncquoy S, Thebaud E, Blouin P, Gandemer V, Menkes O, Pellier I, Carausu L, Millot F. Conséquences d’un cancer dans l’enfance dans la quête du premier emploi dans l’interrégion Grand Ouest. Étude multiméthodes du groupe Grand Ouest Cancer de l’Enfant (GOCE) chez d’anciens patients et des professionnels. Bull Cancer. 2022; 109(3):318-330. Doi: 10.1016/j.bulcan.2021.06. 015.
35. Bitsko M, Cohen D, Dillon R, Harvey J, Krull K, Klosky J. Psychosocial Late Effects in Pediatric Cancer Survivors: A report from the Children’s Oncol-ogy Group. Pediatr Blood Cancer. 2016; 63:337–343. Doi: 10.1002/pbc.25773.
36. Berg CJ, Stratton E, Esiashvili N, Mertens A. Young adult cancer survivors' experience with cancer treatment and follow-up care and perceptions of barriers to engaging in recommended care. J Canc Educ. 2016; 31(3): 430–442. Doi: 10.1007/s13187-015-0853-9.
37. Michel G, Mulder R, van der Pal H., Skinner R, Bárdi E, Brown M, Vetsch J, Frey E, Windsor R, Kremer L, Levitt G. Evidence-based recommendations for the organization of long-term follow-up care for childhood and adolescent cancer survivors: a report from the PanCareSurFup Guidelines Working Group J Cancer Surviv. 2019; 13 (5):759–772. Doi: 10.1007/s11764-019-00795-5.
38. Szalda D, Piece L, Brumley L, Li Y, Schapira MM, Wasik M, Schwartz LA. Associates of engage-ment in adult-oriented follow-up care for childhood cancer survivors. J. Adolesc. Salud. 2017; 60(2): 147–153. Doi: 10.1016/j.jadohealth. 2016.08.018.
39. Lahaye M, Aujoulat I, Vermylen C, Brichard B. Long-term effects of haematopoietic stem cell trans-plantation after pediatric cancer: A qualitative analysis of life experiences and adaptation strategies. Front. Psychol. 2017; 8:704. Doi: 10.3389/fpsyg.2017.00704.
40. Siegwart V, Schürch K, Benzing V, Roessler J, Everts R. Personal and Social Resources Are Linked to Cognition and Health-Related Quality of Life in Childhood Cancer Survivors. Children (Basel). 2022; 9(7):936. Doi: 10.3390/children 9070936.
41. Lown EA, Phillips F, Schwartz LA, Rosenberg AR, Jones B. Psychosocial follow-up in survivorship as a standard of care in pediatric oncology. Pediatr Blood Cancer. 2015; 62(S5): S514–S584. Doi: 10.1002/pbc.25783.
42. Woodgate RL, Tailor K, Yanofsky R, & Vanan MI. Childhood brain cancer and its psychosocial impact on survivors and their parents: A qualitative thematic synthesis. Eur J Oncol Nurs. 2016; 20:140–149. Doi: 10.1016/j.ejon.2015.07.004.
43. Christen S, Weishaupt E, Vetsch J, Rueegg C, Mader L, Dehler S, Michel G. Perceived information provision and information needs in adolescent and young adult cancer survivors. Eur J Cancer Care. 2019; 28: e12892. Doi: https://doi.org/10. 1111/ecc.12892.
44. Salchow J, Mann J, Koch B, von Grundherr J, Jensen W, Elmers S, Straub LA, Vettorazzi E, Esche-rich G, Rutkowski S, Dwinger S, Bergelt C, Sokalska-Duhme M, Bielack S, Calaminus G, Baust K, Classen CF, Rössig C, Faber J, Faller H, Hilgen-dorf I, Gebauer J, Langer T, Metzler M, Schuster S, Niemeyer C, Puzik A, Reinhardt D, Dirksen U, Sander A, Köhler M, Habermann JK, Bokemeyer C, Stein A. Comprehensive assessments and related interventions to enhance the long-term outcomes of child, adolescent and young adult cancer survivors - presentation of the CARE for CAYA-Program study protocol and associ-ated literature review. BMC Cancer. 2020;20 (1):16. Doi: 10.1186/s12885-019-6492-5.
- Resumen visto - 1544 veces
- PDF descargado - 406 veces
- XML descargado - 0 veces